Die Agenda und die Details zum FDA Workshop am 25. - 26. April sind jetzt veröffentlicht worden.
Man kann sich für den Event vor Ort bereits registrieren. Die Registration für den Webcast wird ca. eine Woche vor dem Event möglich sein.
Der Event über Webcast findet am 25. April von ca. 19.00 - ca. 23.00 Uhr statt
Am 26. April von ca. 15.30 - ca. 23.00 Uhr.
The CFIDS Association of America believes this is a historic opportunity for the ME/CFS* community to establish ME/CFS as an important priority for drug development. We’ve launched a special patient-focused survey and six-part spring webinar series to inform, educate and engage with the community so that our individual contributions have amplified impact. Learn more here: http://bit.ly/spring-series
We’ve collected other resources about the workshop here for convenient reference.
The workshop will be held on April 25-26, 2013 at the Bethesda Marriott, 5151 Pooks Hill Road, Bethesda, Maryland.
April 25 — 1:00 p.m. (EDT) until 5:00 p.m.
April 26 — 8:30 a.m. (EDT) until 5:00 p.m.
The workshop is open to the public on a space available basis. It will also be webcast live. Advance registration is required to attend either in person or by webcast. There is no fee for registration.
Unrefreshing sleep has been recognized as a major problem in chronic fatigue syndrome for decades; it is for, instance, one of the eight symptoms in the International Definition, but documenting its cause has been difficult to say the least. Some delta wave problems have been found but traditional sleep studies have generally found minor or inconsistent problems in chronic fatigue patients’ sleep and little that could account for the sleep issues found. Several recent reviews of sleep findings highlighted how paltry the findings have been.
A 2012 review concluded that “polysomnographic and other objective measures of sleep have observed few differences in sleep parameters between CFS/ME patients and healthy controls”. A 2011 sleep study reported “While classical sleep studies…. have shown varied, nonspecific changes in sleep structure and efficiency in a subgroup of patients with CFS, these studies have not revealed any substantive evidence indicative of a primary sleep disorder….”